Hallelujah!I took Molly to another new doctor last week, a liver specialist. I was sure this was our chance to finally find out some answers to…Feb 15, 2021Feb 15, 2021
MultilevelIn the weeks since my last post, events have happened in slow motion. With multiple storylines happening simultaneously. And with much…Jan 22, 20211Jan 22, 20211
WaitingWe’ve waited 2 weeks for the scheduled televisit with Molly’s specialist in which we’ll learn more about what’s going on with her. During…Dec 24, 20201Dec 24, 20201
Care for the CaregiverI knew I needed a break. I had gotten not just to the end of my rope, but too far past the end.Dec 18, 2020Dec 18, 2020
“Jesus was holding my hand.”Molly had an endoscopy procedure a few days ago, a view of her stomach with a camera. The procedure went smoothly, and they found out some…Dec 14, 2020Dec 14, 2020
Elevated liver enzymes and ever so slightly elevated ceruloplasmin — what story are they trying to…My adult special needs daughter had routine blood work come back with some wonky liver enzyme numbers in October that led to a trip to the…Dec 11, 20201Dec 11, 20201
I requested a routine blood test to be done for molly because of my ‘mom sense’ that something…It is stressful to go to the ER during a pandemic. During that visit, several inconclusive tests were run, then molly was referred to a…Dec 10, 2020Dec 10, 2020
Here we are.This moment is inviting me back to my resolve to tell molly’s story, in the hopes that our story might help other parents of special needs…Dec 10, 2020Dec 10, 2020
